My trip to Harry Potter World.

It was amazing and I was so surprised at its accessibility and how friendly staff were. 

The bus ride was soooo funny. Here’s some pictures… enjoy! It’s definitely worth money and I will hold the memories in my hear forever. The script to screen workshop was so amazing. I learnt something amazing secrets about the film industry.

I’m so proud of myself, I coped really well with the crowds so I treated myself to a Deathly Hallows notebook and a wand/pen.

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Quote of the day 

For every key I press I’m closer to completing coursework and my short story entry.

Quick nap for an hour, lunch then back to the grindstone, English Language this afternoon – At least I’ve completed my coursework, just waiting for feedback then on to the next draft. 

Notice

Hello everybody,

I hope you’re having a lovely week! Just a quick note: the reason for the lack of posting is, I’ve got my study motivation back and I want to keep it up as the next six weeks are crucial. A levels are tough and I’m feeling the push for getting into uni as well as balancing my ME and relationship. 

So I’m sorry but I will be less active but please don’t desert! I have three months off before uni. I will try to check in occasionally. My study day off is Friday and Saturday evening so I will try my hardest to post Tuesday’s and thursday’s creative writing task and my book reviews for February.

Thank you, for supporting my journey to publication. 

Diary of a Chick on Wheelz: Thursday

This week I’ve been struggling with hip pain and fatigue so much so that I burst in to tears in college after doing an hours work.

That aside, Thursday I felt like I was 15 again! I had tonnes of energy, very little brain fog and I felt so positive! I was even able to stay up till 10pm. Best part of my day was talking to my friend sally who runs wheeling along 24 and also has ME so it was nice to swap tips, stories and most importantly rant!

Whilst family support is lovely, having a friend who knows what you’re going through is great.

Needless to say, Friday I was exhausted and in pain again but that’s the roll of the dice.

Unfortunately this hip pain and discomfort means I can’t be in my chair for long and college is agony, resulting in this: 

So that means I have to skip my boyfriend’s first football match tomorrow (Swansea Bravehearts) and I feel like letting him down but who knows? At the last minute I may feel up to it.

Still no news on new chair despite me ringing. Plus the dreaded catheter change on Wednesday…

Weirdly, the carers service want to supervise a bathing session just so they can put it on a report. (Even though they wouldn’t help normally because of the lifting). We’ve decided to decline the service as their always late and by the time my parents are home and helped me. They won’t cook food my mum has prepared and set aside due to health and safety, they’ve left the front door open and twice have pulled my catheter without apologising and they struggle to follow specific instructions like ‘go to the third cupboard along by the sink and please get the jug to empty the catheter’ They bring a vase, my mum’s peonies have never been the same since. Also, they can be quite patronising!

Meanwhile the search for the PA continues!

Meanwhile Swansea has agreed for me to proceed with my uni application now I’ve submitted ‘evidence’ that my body doesn’t function. It would be easier if it was a stand up/ fall down test. (My mum actually did that once when the DWP demanded I go to their offices to prove my disability.. SPOILER ALERT: I fell but my mum caught me…always)

There you go, there’s you update!

Hugging a grave stone

My prompt today in class was a child hugging a gravestone and I had to write a flash fiction piece.

I heard the pop and fizz of another can being opened and my heart sunk. I may be three but I was intuned to every sound and movement waiting for daddies anger to erupt by a volcano and more often than not the bubbling inferno was quenched by the pale ale that never seemed to run out. 

I remember the rain lashing down the skies grey and heavy like our hearts. It may have been winter but I was wearing my tartan dress with no tights and my sleeves grubby. My hair hadn’t been brushed and it seemed days ago since I had nana’s shepherds pie.

I was playing with my dolls when daddy fell asleep in front of the fire with the back door. The room was dirty and that made me sad but I didn’t cry. I miss mummy I needed to speak to her and ask her to come back but she was playing statues in stone in my friend, Jesus’ garden.

The pavements were digging into my bare feet. I was carefully to dodge the puddles because mummy said if you get your feet wet you sneeze.

It was dark by the time I reached the squeaky gate and the grass in his garden was as tall as a jungle!

I found mummy and begged and pleaded. I muttered and sobbed as I hugged her headstone and where she would usually be squishy she was stiff and cold. 

A while later, I felt a hand on my shoulder. It was daddy with a pair of strappy sandals in one hand and rose in the other. We laid down the rose and went on our way. The rain fell as we passed the pub and daddy looked like our old puppy, Rover wanting to go in and play. He stared longingly but instead walked on, and squeezed my hand.

As we came out the shop laden with food, new undies, the lemon stuff that washed the loo which I wasn’t allowed to touch and we headed back home.

The sun shone and I knew mummy had listened. Sometimes it takes losing someone you love to make you realise how lucky you are to live on.

A Poem Reflecting Grief.

So yesterday’s task was to write a poem reflecting grief and loss. So, here’s mine:

As a toss the lilies on the earth

And say goodbye to you, I think what what life is worth without you. The world seems silent without your laugh, the stars dimmer.

A part of me went with you,

My heart is split in two, I place one half with you.

I wept for what we had and what we would have had. But this I cannot change. 

I haven’t changed our answer phone as to me you’re not gone.

I boil with anger at why the world hasn’t stopped for you. The colours seem too bright now, the world is at peace whilst I cry.

To me, the light has gone and to me that’s how I want it to stay because the darkness doesn’t betray to others how at a loss I am.

Until you light my way, I want move on until you give me a sign. The old me has died too.

Ultimately I’m too scared to be reborn in a world without you.



“Who wants to become a writer? And why? Because it’s the answer to everything. … It’s the streaming reason for living. To note, to pin down, to build up, to create, to be astonished at nothing, to cherish the oddities, to let nothing go down the drain, to make something, to make a great flower out of life, even if it’s a cactus.”

—Enid Bagnold