ME Tips – A survivors Guide

Tips are my own and may not work for everyone – consult your doctor before making any major changes to diet or medications.

  • Organise your medication for the week – I’m ashamed to say my mother does this for me. It’ll be easier especially during brain fog where you don’t have to think of what tablet to take.
  • Say there’s a TV show you want to watch at 9pm but it’s too late for you? Well take an hour and half nap in the early afternoon because you’ll be refreshed but by the time 9pm rolls around you’ll be tired enough to sleep through the night later on.
  • Don’t beat yourself up about flare days or having to cancel on friends – they should love you enough to understand, you already feel guilty and you don’t need added pressure on top.
  • Make the most of good days even if it’s just a walk outside
  • If you’re like me and whilst your body hurts but your mind is racing, let audiobooks/colouring become your best friend or treat yourself to s Netflix subscription.
  • Natural sunlight is the best medication – typically the more vitamin D I have the more improved my ME is.
  • Understand what’s a flare and what’s not – a diary is helpful thing to have especially when visiting the doctors.
  • Flick the bird when someone says ‘Your illness isn’t real.’ You live it, they don’t.
  • Keep hydrated
  • Regular toilet visits help especially with all the meds.
  • Anti depressants help – an invisible illness is hard to deal with
  • Don’t get your hopes up about trials and new research.
  • Connect with the chronic illness community on social media – you are not alone!
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