please share and help the Strictly Dragons be the first welsh team to compete at @ParaDanceUK in October. https://www.gofundme.com/bcdp-get-to-our-dance-competition Yours sincerely Rachel Jeffery #inclusivedance
Okay, I’ve cheated and taken this from my old blog Wheelzandheelz (don’t judge me. Sometimes it’s tiresome to type the same story thrice over.) It was December 14th (I remember because it was my nan’s birthday) and my usual bus driver was off sick. So, it was up to the escort to strap me and the other wheelchair user in but, she didn’t know how to strap the back of the wheelchairs, including seatbelts and told the driver ‘it’s okay as long as we drive slowly’.We pulled up at school and we were late because he didn’t know the route. So she unstrapped me and I switched my phone off put my headphones round my neck (as I always do) and I clearly heard the escort say ‘come back’ and I heard the ramp noise and out the corner of my eye I saw the ramp there.Except it wasn’t, the next thing I remember I’m lying on my back in my crying. The escort told me to shut up at one point. Another taxi driver rushed to help me up. My TA saw and thought someone was playing a joke but as soon as I saw her I burst into tears. After some shortbread and hot chocolate. They noticed I had I curve in my back and I experienced some back pain.My mum drove to And E saw fast I felt like the bloody Stig. They couldn’t find anything wrong only a slight curve and sent me home with some codiene. I had this pains and deteriorated so quickly it robbed me off four years and only now I’m I getting in sparkle back. I even had a Doctor Who thought I diagnosed myself with cerebral palsy and bought my own wheelchair and said to my mother if there was a magic wand don’t you think your daughter would’ve had it by now? Other point I changed consultants. My chair is of had a fracture so I had to wait for a new one which took agesThe route doctor saw that I hadThe route doctor saw that I had a prolapsed disc said it was only minor and didn’t reply surgery. The pain deterioration was on bearable. I then had a to go into hospital as my nerves were in hingeing on my bladder and I couldn’t be leaving me with a permanent catheter bag. They thought a few injections into my back and I’d be fine. Except I wasn’t. I was on more drugs than the lot in train spotter and I it didn’t do anything for my pain. My mum took nearly 2 years out of to care for me and it was hard every day and of depression was just like a dark cloud.They thought they could relieve my nerves by Botox but that only made it worse, then I saw my new consultant in Swansea she saw my MRI and finally gave me the answer I was looking for, she took out the two prolapsed disc’s. Before that, they tried a baclofen pump and a morphine pump at the back of Baclofene pump only made me violent and suicidal but the morphine pump was like heaven. But at what point do you say you can’t have any more morphine? So she agreed to surgery and it was the best day of my life it was like I’ve been given a part two. ( I will do a more detailed post on surgery day at a later date ) Okay so today I still have sciatic pain and pelvic pain which they don’t know the cause of it but, I take that any day over back pain so I could live my lifeAfter the accident we try to sue the bus company but they believed the wheelchair user at fault which is unbelievable because I never drive with headphones on. This post can only give you an inkling of what I went through but the main thing for me from getting back to that 15-year-old girl that I was before this accident happened.
- Skipping lines
- Great parking spaces
- Exclusive toilets that have better hygiene
- Great painkillers
- Learn tons of medical tips
- People taking up blue badge spaces
- Catheter blockages
- Physio therapy
- Startle reflex
- Wheelchair breakdowns
- Bullying/ patronising comments
Do you have any personal pros and cons of life with Cerebral Palsy? Let me know in the comments!!
- Mamma Mia
- Mamma Mia 2: Here we go again
- The Greatest Showman
- Roman Holiday
- Funny face
- Cinderella (1950)
- Dirty Dancing
- Me and The Orson Wells
- Look who’s talking
- Beauty and the beast (2017)
- The Forger (2016)
- Game Plan
- The Help
- The Little Mermaid
Did any of your favourites make my list? I’d love to know what yours are!
Okay, this is going to be like ripping off a bandaid.. I take cannabis oil. It is legal and is sold as a food supplement but it is a great muscle relaxer. I’m not ashamed, when you have my levels of pain you’d want anything to stop it.
There’s no high with it.
It’s the best thing ever seeing as my painkillers make me depressed and ‘dark’ plus, back up my bowels longer than the M 25 on a Friday rush hour.
It’s literally magic in a bottle. I take five to seven drops as and when and my spasms reduce dramatically.
TO ALL CEREBRAL PALSY FIGHTERS,
SUFFER NO MORE.
It’s lovely to get back into writing again. Doing multiple projects including:
- A 1700 word non fiction essay due 15th of August
- A 1000 word story for Readers and Writers lounge due 31st of August
- A 1700 word Romance Story due 15th September
- A 300 word story for A story for Daniel Due 31st October
- A 1000 word short story Due 1st November
- A 1000 word short story on hope Due 1st of November
- Prioritise deadlines
- Do each assignment in chunks, say 500 words a day.
- Write down a rough draft on paper then type it up.
- Turn off WiFi
- Set time limits when you’re writing
Don’t be a writer, be writing – William Falkener